FTF Blog


11/19/14

Recent Meetings

 

The Fecal Transplant Foundation recently hosted our first exhibitor booth at Digestive Disease Week (DDW) in Washington DC, May 17-19, 2015. DDW is the largest gathering of gastroenterologists in the world, with over 17,000 attendees this year.  FMT was a very hot topic, with many educational sessions dedicated to various aspects of FMT.  We met physicians and researchers from around the world employing FMT for a variety of indications, and researching potential applications.  We also conducted a five (5) question survey regarding the use of FMT in the U.S., and will soon post the results of the survey, which will be forwarded to FDA/CBER.

 

The Fecal Transplant Foundation was honored to attend the James W. Freston Therapeutic Innovations in Microbiome Research and Technology: A Further Look into Fecal Microbiota Transplantation held by the American Gastroenterology Association and hosted by Dr. David Rubin and Dr. Stacy Kahn in Chicago on August 16 and 17, 2014. Catherine Duff was the only patient advocate to speak at the meeting, urging doctors, researchers and regulators to keep the patient perspective foremost during their work. There were about 150 attendees and speakers from around the world, discussing past and present research, indications for FMT, future regulatory direction, and ethical and social issues associated with FMT. The event was live tweeted by Duff and others.

 

BY CATHERINE DUFF

 

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11/17/14

Patient Advocacy

The Fecal Transplant Foundation is proud to announce our involvement with the following projects:

The Fecal Transplant Foundation is serving as a Patient Representative on a PCORI (Patient-Centered Outcomes Research Institute) Grant submitted by Dr. Nasia Safdar at the University of Wisconsin to study the effectiveness of FMT via enema for recurrent CDI.

Catherine Duff is serving as a Patient Representative on the CDC’s Scientific Advisory Board on a PCORI grant submitted by the Dr. Ebbing Lautenbach, MD, MPH, MSCE, Perelman School of Medicine, University of Pennsylvania and the CDC to study the effectiveness of targeted antimicrobial reduction in reducing the incidence of CDI.

Catherine Duff is serving as a Patient Representative on an NIH (National Institutes of Health) grant submitted by Diane Hoffman, Professor of Law, Director, Law & Health Care Program, University of Maryland Carey School of Law to create a Working Group to develop and propose a framework for future regulations for Microbiota Transplantation.

BY CATHERINE DUFF